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TEAM DEADPOOL

hellkatbaby

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Welp - I guess it's time to start the blog and not clog up the threads: This is my 2nd try but it doesn't seem to show up?? But anyhow!!

 

TEAM DEADPOOL is officially GAME ON! 

 

Today was another good day! I'm 1/2 way through my radiation treatments with only 5 days to go (excluding weekends)! After this AM's treatment I met back with my radiation/oncology team. They have reduced my steroid intake to only 1 pill a day which means the treatments are doing their job. They plan to wait 60-90 days for my next MRI to make sure everything is A-OK and that is the best waiting time to get the best results. He knew they were waiting on that 'thumbprint' gene however had not known that it was confirmed and immediately ran out to check my files. When he came back he seemed as relieved as we did yesterday! 

 

He wanted to make sure I wasn't having any side effects or vision changes (which I haven't) and advised again that in the up-coming weeks I may start to see my hair falling out. Again - small potatoes but considering I have long thick hair and they keep looking at it like 'we just don't know' and I also feel they don't want me to 'lose' site of the fact that it may or will happen just so I'm prepared. But in all honesty I do expect to lose it - and that's OK and the least of my worries at this point. All my vitals were totally normal and now that I'm down to just the 1 steroid a day sleep should hopefully come a lot easier now and I'll be over the whole 'zinging' around with this unfiltered energy at odd hours of the night. Fingers crossed!!

 

I made my 1st frozen fruit juice pops this AM and got to try them when we got back - I have to say I'm impressed with myself lol. My mom even liked them and said it took her sweet tooth edge away. Later on I cut up some kiwi and had her try it, she actually ended up stopping by the store on her way home to pick some up she liked it so much! You go mamma!! 

Tonight we dine on whole wheat spaghetti - this will be a 1st for me so we'll see how it goes. A nice fresh salad mix with berries, nuts, a tad of parm cheese and homemade dressing! MMMM - cant wait!! 

 

I'm just feeling really good!! I didn't push today and even rested and recharged which was what I needed as the last thing I need to do is burn myself out. All positive thoughts and trying to find that balance with everything seems to be pulling together at last. Gearing up for the next level so to speak. 

 

I hope everyone has a great night and no matter where you are in this battle never give up - never give in or Team Deadpool will come kick your ASS!!!!

 

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I declare today "recliner day" and prescribe a good book or some bad t.v., along with "breakfast in recliner" cooked by BF the chef, and a couple of dogs at your feet making sure nothing hits the floor.  Enjoy a lazy day in your uncluttered house and hopefully the CBD will help get your sleep back on track.  

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9 hours ago, Jordan7 said:

I declare today "recliner day" and prescribe a good book or some bad t.v., along with "breakfast in recliner" cooked by BF the chef, and a couple of dogs at your feet making sure nothing hits the floor.  Enjoy a lazy day in your uncluttered house and hopefully the CBD will help get your sleep back on track.  

 

And that's pretty much how the day went lol! Grease has been on and even though I've seen it a million times I could watch it a million more. 

 

I do think the CBD helped. I used to smoke weed recreationally and of course it always gave me a good sleep and chilled me out lol. So I did have her pick me up a bottle that way I can have 1 to take at night and then 1/4 or 1/2 the dose for my anxiety during the day as I ween off the Xanax. Also doing my rabbit hole researching found that there is no interaction between the Tagrisso and medical marijuana so then dug into the case studies and basically it came down to nothing but beneficial.

And being in the state of Fl. I'm eligible to obtain my card based on my dx. Of course I plan to let my Dr. know, not sure if he'll be pro or con but again that's where I get to step in as my own 'patient advocate' and make my own decision and not be denied treatment. Again it's just something that makes sense vs taking a bunch of synthetics for this or that when there's something natural that will do it all. 

 

I reached out to my neighbor today who went through it with breast cancer and she was so glad I did and I am too. I really needed someone close to talk to and apparently she had been waiting for me to reach out. We talked for a good hour or so and I just felt so much better afterwards. It helps when someone 'gets it'. She's also retired and the caretaker for her husband (dementia and dialysis) so she's been feeling isolated and lonely and would enjoy spending time with someone.  So we agreed we'd support each other.   Starting tomorrow we are going to start a ritual of walking every AM before it gets too hot.  We both need the exercise and now have a buddy to do it with. Then in the afternoons her H doesn't have treatments or my family isn't here we'll get together and play board games or cards. She's a big scrabble fan so that works for me and helps keep the mind sharp. But I think all and all we were both relieved to know that were not alone in our situations and that two are better than one and we can encourage each other.

 

Hopefully tonight I sleep good. I hope everyone has a goodnight and remember NOPE!!! We can do this!! 

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I am so glad you connected with your neighbor.  Sounds like you both will be supporting each other.  Hellkat, you are doing awesome.  

I don't think your doctor will have a problem with the cannabis.  I am finding more and more people who have had there doctors recommend it.  

Sleep well tonight.

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11 hours ago, Linda Thomas said:

I don't think your doctor will have a problem with the cannabis.  I am finding more and more people who have had there doctors recommend it

 

I wouldn't think so either Linda. Doing my research it seems most Dr's are now more pro than anything. I will say I don't feel as fatigued as I had the past few days which is great! That lack of sleep wasn't helping either so hopefully it will get all turned around. I'm sure I'll have the days that hit me harder than others but at least now I know what to expect now and how to manage it. One day at a time. 

 

Alright so Team Deadpool back in action! We took a nice 20 min walk this morning - not bad for our 1st day. I'm definitely taking some 1lb weights to carry tomorrow, keep those legs and arms in action!! Her hip was giving her problems near the end so we might take it a bit slower tomorrow. Every day is progress. I figured today I would just pace myself. Rest when needed and be active when I can. Be smart and listen to my body. 

 

Starting to re-think a few things I did on impulse such as the wigs. I don't really need that 2nd wig at all. That was definitely an impulse order. Since I haven't done the try on yet it hasn't been billed to my insurance she can return it and I can save the benefit for later in the year if I decide. Just trying to be smarter on some of my decisions and not go off emotions wrapped up in the moment. 

 

So here's to the rest of the day and what it might bring. No big plans today so I'll just take it by the seat of the pants and see where it takes me! 

 

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