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TEAM DEADPOOL

hellkatbaby

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Welp - I guess it's time to start the blog and not clog up the threads: This is my 2nd try but it doesn't seem to show up?? But anyhow!!

 

TEAM DEADPOOL is officially GAME ON! 

 

Today was another good day! I'm 1/2 way through my radiation treatments with only 5 days to go (excluding weekends)! After this AM's treatment I met back with my radiation/oncology team. They have reduced my steroid intake to only 1 pill a day which means the treatments are doing their job. They plan to wait 60-90 days for my next MRI to make sure everything is A-OK and that is the best waiting time to get the best results. He knew they were waiting on that 'thumbprint' gene however had not known that it was confirmed and immediately ran out to check my files. When he came back he seemed as relieved as we did yesterday! 

 

He wanted to make sure I wasn't having any side effects or vision changes (which I haven't) and advised again that in the up-coming weeks I may start to see my hair falling out. Again - small potatoes but considering I have long thick hair and they keep looking at it like 'we just don't know' and I also feel they don't want me to 'lose' site of the fact that it may or will happen just so I'm prepared. But in all honesty I do expect to lose it - and that's OK and the least of my worries at this point. All my vitals were totally normal and now that I'm down to just the 1 steroid a day sleep should hopefully come a lot easier now and I'll be over the whole 'zinging' around with this unfiltered energy at odd hours of the night. Fingers crossed!!

 

I made my 1st frozen fruit juice pops this AM and got to try them when we got back - I have to say I'm impressed with myself lol. My mom even liked them and said it took her sweet tooth edge away. Later on I cut up some kiwi and had her try it, she actually ended up stopping by the store on her way home to pick some up she liked it so much! You go mamma!! 

Tonight we dine on whole wheat spaghetti - this will be a 1st for me so we'll see how it goes. A nice fresh salad mix with berries, nuts, a tad of parm cheese and homemade dressing! MMMM - cant wait!! 

 

I'm just feeling really good!! I didn't push today and even rested and recharged which was what I needed as the last thing I need to do is burn myself out. All positive thoughts and trying to find that balance with everything seems to be pulling together at last. Gearing up for the next level so to speak. 

 

I hope everyone has a great night and no matter where you are in this battle never give up - never give in or Team Deadpool will come kick your ASS!!!!

 

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I'm actually learning to be a better cook but my BF is actually the 'chef' of the house which is great so I'm learning from him. Dinner went really well and they actually went back for 2nds! We grilled chicken, had some fresh snapped beans with bacon (a cheat day for me) and some stir fried rice! It was really good and plenty of left overs for tonight!! We plan to make this a weekly or bi-weekly thing from here on out with the family. 

 

Sleep will find me I know it will. Tonight the pups woke me at 2:30 wanting to go out. 🐶  I  think they are now on MY wacked out schedule lol. But it will level out in time and I'm curious to see if not taking that memantine and letting that get out of my system will help.  After today I have 1 treatment left then 2wks of just me time before the next leg of the battle!!  Today will be chillax day since we did so much yesterday and there's nothing left to clean or organize which is wonderful! All I have planned is to go to my treatment then back home to do my exercises and then hit the easy chair. I might even dive into a jigsaw puzzle or finally those coloring books. I used to love to paint but I can still draw so I might pick that up again! 

 

Hope everyone has a great week!! And remember to NOPE!!!

 

 

deadpoolbobross1.gif

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hellkatbaby, dinner sounded wonderful.  My husband is a chef too.  He loves the cooking channels.  

Yay! last treatment. That will be a big relief.  

You need to share pictures of those pups.  There is a dog section but you can post them here.  Mine are early risers.  I think there was a rooster on the farm, where we got them.

They will be two in October but are still a work in progress.  

You definitely should go back to painting.  I did a ton of crafting while I was recuperating.  Art is so soothing to the soul.  

You should celebrate your day today and then come home and relax.  

Go Team Deadpool!

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Glad your dinner came out well, it sounds yummy. A lot of your insomnia could also be related to quitting smoking. Most of us had some insomnia the first month or two of our quit but soon found our -zzzzzzz's again :)

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9 hours ago, jillar said:

A lot of your insomnia could also be related to quitting smoking. Most of us had some insomnia the first month or two of our quit but soon found our -zzzzzzz's again :)

 

I'm ready to find my zzzzz's again that's for sure! hopefully it will find me tonight 😴.  If the pups wake me again I just might start crating them at night. I hate to do that because they are really good and only falling into step with my whacked schedule and I feel safe with them but we ALL need to get on the right schedule again.  Gotta love them though!! 

 

Today was a nice chill day - I didn't bother with any household chores aside of making something to eat and then turned my phone on silent and just relaxed without feeling a bit guilty about it. Even though I wasn't able to 'nap' I was able to recharge which is just as important. I still do my exercises and mindful breathing. Last night I was so relaxed afterwards I couldn't even bother to write in my journal - kept finding myself nodding off lol. I could crawl into bed right now honestly but holding off to see if I'll be able to sleep just a tad later. 

 

Tomorrow is my last day of radiation and I get to ring to bell from round 1!! I'm going to have the nurse use my phone to take a video of it of course and then take my mask home and get to work on detailing that sucker out Deadpool style! Then I'll have the next 2 weeks to get into a really good routine before round 2 starts.

 

My sister should be back in town mid-week and I can't wait to just see her and just hang out. She texted me late the other night and seems their trip and turned into more of a nightmare and she is ready to get back to Florida and take a vacay from her vacay. and selfishly I'm ready for her to be back. 

 

So here's to tomorrow - me ringing the bell and getting my mask! Oh yea!!!! 

deadpool.gif

Edited by hellkatbaby
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image.png.a33a7b2170e533973e5c09a49728c38b.png

 

We'll be right beside you tomorrow, celebrating and ringing in the end of round one.  Here's to you and to all of your spectacular tomorrows to come! 🥂 ❤️

 

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Ugh it's happening - and on the last day of treatment!!. I went to take my hair down and the strands just starting pulling out. So I took my brush and gently ran it through and more thinning, lot's more thinning....I went ahead and just cut it up to my shoulders and then gave it a gentle wash - still more thinning as the strands just kept coming. It seems to be more the in between or underlayers at this point then the top so I guess over the next few days and see what happens to the top and decide if I just need to shave it or not. Ironically I did pick up a sleep cap at their on site shop today after my appt.as a 'just in case'.  Good thing cos looks like I'm going to need it to keep from shedding all over myself and everywhere else in the meantime. Again small potatoes.  I guess some things no matter how much you prepare for them - you really aren't prepared until it happens. I'll do some more you-tubing on wrapping my scarfs and home-made turbans from T-shirts just to wear around the house. Gotta love those life hacks! 

 

Other than that it was a good day - everyone gathered round as I rang the bell! The staff there is so wonderful! I also had my follow up today and starting tomorrow I only take 1/2 a steroid every other day for a week then I'll be completely off right before I start my new pill for the 2nd 1/2 of the battle on the 28th with 'the pill'. 

 

After we left we just came back to the house and grabbed a bite to eat since my mom had her own appt. to go to. Then I napped!! Oh what a great nap it was - almost a solid 2hrs! And with no big plans tomorrow and no more treatments to have to go to I'm so doing that again lol. My body needs it and is thanking me for it. After napping I then broke out one of those jigsaw puzzles and really got sucked into it. It's been years since I've done one and forgot how relaxing they can be.

 

And @Linda Thomas here is a pic of my pups - I'll try to get a side by side of them tomorrow! 

 

deviltank.jpg

bigbootyluna.jpg

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1 hour ago, hellkatbaby said:

And @Linda Thomas here is a pic of my pups - I'll try to get a side by side of them tomorrow! 

They are so cute.  Love the devil horns.  My Angel needs those.  She looked like an Angel but I think she is the instigator in my pack.  

One looks like a big guy.  How old are they?  What are their names.  You said they have been out of the crate.  I don't think I will ever be able to take mine out of the crates.  

Those pups are the best medicine for you.  

Don't worry about the hair loss.  My friends, who lost hers,  during treatment, had it grow back much thicker and curlier.  It was beautiful.

Now is the time to rest and mentally prepare for the next battle.  You are doing great.  

 

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2 hours ago, Linda Thomas said:

They are so cute.  Love the devil horns.  My Angel needs those.  She looked like an Angel but I think she is the instigator in my pack.  

One looks like a big guy.  How old are they?  What are their names.  You said they have been out of the crate.  I don't think I will ever be able to take mine out of the crates.  

Those pups are the best medicine for you.  

Don't worry about the hair loss.  My friends, who lost hers,  during treatment, had it grow back much thicker and curlier.  It was beautiful.

Now is the time to rest and mentally prepare for the next battle.  You are doing great.  

 

 

Their names are Tank (the rottie) and he's almost 6 and then our Big Booty Girl Luna who's almost 5 - we think she's part kangaroo part mastiff lol!! She really wants to help but she has no thumbs!!

 

I know the hair will grow back but it's such a big step to think about shaving it just yet since the top is all still there. However the slightest movement or touch and the rest of the in- between layers are just all over my clothes, the floor - just everywhere which is why I just went to the shoulders and tucked it under the cap for now.  I figured if it was still coming out like this over the next few days I'll go ahead and just have it buzzed off. I did some googling and found a place 5 min from me called 'in the pink' and they will do it at no cost. They also offer free yoga classes for cancer patients and survivors every Wednesday at the beach so I'll check with my Dr. to see if I can get the OK for something like that. It would be nice to get to socialize a bit and meet some new people who 'get it'. 

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Bald is beautiful.. it says I'm a fighter. It says I am strong. It says I have untold power and strength.... And yet it's still daunting when it happens, I was fine when the hair fell out had one if the kids I tutored buzz it off for me but the day I wiped my eyes and I was left with a handful of lashes, I broke....cried and cried and cried. 

Not sure what it's like where you are but over hear we have free wigs , if you want to go that way. Check with the support groups they will know what is out there. 

Just think, often it grows back differently, and you will have virgin hair again, never coloured or permed. Mine came back darker and curlier. Completely different.

Edited by notsmokinjo
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24 minutes ago, notsmokinjo said:

Bald is beautiful.. it says I'm a fighter. It says I am strong. It says I have untold power and strength.... And yet it's still daunting when it happens, I was fine when the hair fell out had one if the kids I tutored buzz it off for me but the day I wiped my eyes and I was left with a handful of lashes, I broke....cried and cried and cried. 

Not sure what it's like where you are but over hear we have free wigs , if you want to go that way. Check with the support groups they will know what is out there. 

Just think, often it grows back differently, and you will have virgin hair again, never coloured or permed. Mine came back darker and curlier. Completely different.

 

Thank you for the reminder @notsmokinjoI told myself it would be small potatoes and when I woke up this AM the cap had slipped off and the hair was piled inside and still coming out. So - bald and beautiful it will be. I just need to figure out if I'll use a #2 guard or a #1?? Any suggestions would be welcome! I've already taken a few old t-shirts and cut them off right under the arms and learned to make a turban with them. I put that one on this AM and seem to work pretty darn good!!

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Round one complete, and it's Team Deadpool's hellkatbaby for the win!!!  Ugh on the hair loss, but as everyone has said, it will grow back. It will be like that really short haircut you get and then aren't so sure about for a while, but it all works out.  In the meantime, you are going to ROCK the bald and beautiful and will probably end up becoming a famous turban designer and we can all say we knew you when.   Speaking of rocking it, Tank is owning those devil ears and what a sweet baby smile he has.  Luna is gorgeous, too -- that's a beautiful pair of pups you have taking care of you.  Time for more rib bones. 

 

Yoga on the beach sounds like a perfect way to relax, so hopefully your docs will give you the go ahead. Otherwise, maybe that group has other meet ups that you can attend until you're beach yoga ready.  

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Sorry about the hair loss hellkat, I'm glad they warned you it could happen so it wasn't a total surprise to you. Your dog's are awesome, no one's getting around their mommy without you knowing it lol. 

I'm glad you found a place near you to get your hair shaved off. I bet they have tons of clues for you as far as where to get wigs, hats, turbans, etc as well as other clues to navigate this storm.

I know I've said this a few times but I'm in awe of your positive outlook and how you are handling everything. It's really something impressive and I wish I had that quality in me, xoxo.

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I actually went back to the MD Anderson shop today and was able to switch out one of the night caps for a slouch type turban and asked her about the hair situation. Turns out they do it there for free as well! And since insurance will cover the wig I figured why not!! So I went ahead and tried on a few while I was there. I did find one that I really liked that matches my eyebrows natural color so I have an appt. on Friday to have it all taken care of! I figured I could wear it when we go out to dinner or do something special. But for right now I'm rocking the T-shirt turban with the rest of my hair tucked in. 

 

And I do love my babies - Tank is at my feet now (as always) snoring away! Which sounds like a great idea for me to do myself - recharge for a bit! 

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Hi hellkat, you've been pretty quiet today so I hope you're getting that much needed sleep, xoxo

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I went with a 1 buzz. It was just easier. I'm a big soon and didn't like the wig so just rocked scarfs and trubans and bandanas and I had these super soft and gentle headbands that had the triangle scarf bit built in. Scarfs/bandanas were the best because there were lots of different ways to tie them.

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5 hours ago, jillar said:

Hi hellkat, you've been pretty quiet today so I hope you're getting that much needed sleep, xoxo

 

Thanks for checking in - I just ended up getting wrapped up in the day that was supposed to be 'relaxing' but turned out to be one of those unexpected busy days. Never did get any sleep much less to really sit down until bedtime at 11 and now it's 3AM again! SIGH.....my new 'wake up' time. Hopefully I'll catch some zzzz's around 4ish before the house starts buzzing when my BF wakes up. 

 

56 minutes ago, notsmokinjo said:

I went with a 1 buzz. It was just easier. I'm a big soon and didn't like the wig so just rocked scarfs and trubans and bandanas and I had these super soft and gentle headbands that had the triangle scarf bit built in. Scarfs/bandanas were the best because there were lots of different ways to tie them.

 

Oh how I made such a mess of things yesterday lol - I woke up to hair just pretty much coming everywhere and clinging to everything! So thought I'd take control and empower myself by just buzz cutting it. First I did take a little bit and saved a small pig tail of it. But ugh after that what a hot mess that turned out to be 😂🤣 I started with the #2 guard and was like NOPE that looks really sloppy. Then moved to the #1 guard and things went from bad to worse! I finally gave up trying to be 'neat' about it and just swept it all up and threw it away. I never thought I'd do the wig thing but since my ins. is covering it and not costing me a dime I figured I'd take advantage of it. 

 

Then about the time I was going to eat and take a nap my phone started blowing up. It was my insurance letting me know the Dr's tried to put the claim under pharmacy and that was holding everything up. So rather than try and call them and sit on hold and the wait days for them to get to it I just drove up there and had them resubmit the claim correctly. While I was waiting the stylist went ahead and cleaned up my head for me - now it doesn't look like a 2yr old did it lol. But by the time she was done everything was already approved and I was able to walk out wearing the wig I picked out a few days before! So she spent a good 2hrs with me showing me how to take care of it etc. Then I actually ended up order another one before leaving just because! Both are by Raquel Welsh - the first one is called Show Stopper but the name is misleading. To me it's just a very casual just past the shoulders everyday look. But the 2nd one I chose was the Limelight - which is really long and curly and there's ALOT you can do with it. I go back Monday since they had to order that one. I'll post pics of what they look like at the bottom.

 

But by the time I got home I realized quickly how hot a wig can be! I took that puppy off as soon as I hit the door and rocked the t-shirt turban all day. When I went to try it on to show my BF I realized I need lots more practice with these things. He really like it though! Said had he not known what my real hair looked like he would have never guessed it was a wig. But I went from a brunette to a red-head with high lights. Figured I might as well switch things up!! But to be honest the turbans and scarves seem way more comfy and easy for now.

 

My sister got back in town tonight and wants me to come hang out at the river house with her tomorrow - I think a change of scenery will do me good and I can't wait to catch up with her. So I have all sorts of goodies packed for a day of just fun and sister stuff!!! Hopefully I'll be able to catch a morning nap this time before heading out. But if not I know I can just crash out there peacefully. 

 

Ohhhh and my Deadpool PJ's come today!! My BFF ordered them from Amazon so I'm super excited about that lol!! Still haven't gotten around to the mask yet - forgot about paint fumes/marker fumes so trying to figure out if I can just get colored duct tape and do it that way. I'm sure I'll think of something!!

 

So until then TGIF everybody!! It's the weekend, time to relax and enjoy it because we earned it!! 

 

   This is the 'show stopper' or casual  and this is the 'limelight' a bit more dressier. Digging the red though. 

 image.png.06f216c9a326ee2ee8282a6b352a330c.png                        image.png.d07293c9a2a93b5b18d6f4c109356633.png

 

 

 

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Look at you go super hero. After that initial loss with the hair, give it a day or so and you don't notice it. Just remember when it grows back it's an exciting new present .... it could be the same or completely different. Love the wigs you chose though, they are very nice.

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Now you're rocking and rolling.   Great choices on the wigs (I particularly love the first one -- straight and elegantly casual with with a hot red highlight). Those will be perfect for whenever you're in the mood, and turbans, scarves, and hats will be fun to play around for everyday looks.  Baseball caps are always an option and some of these newsboy caps could be good for a change. https://hatsscarvesandmore.com/collections/newsboy-caps

 

 

If you can't use paint on the mask, maybe you could do the red area with fabric and black duct tape or even a thin sheet of rubber for the black areas 

image.png.bd47b422de7b1e2027e68a798d59de66.png

 Or this link shows how to make it out of a red t-shirt.  https://www.instructables.com/id/Deadpool-Mask-1/ .  He uses spray paint for the black area but you could substitute or have someone else do the spraying (or do the fumes never quite go away even after drying outside?)

 

Have fun with your sister today!  Lazing around a river house sounds like a perfect way to spend the day -- don't forget to bring your new PJs.  

 

 

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Those wigs are really pretty hellkat I favor the first one best too  :) I like Jordan's idea about your mask. Maybe crayons or magic markers? Maybe your local craft store would have some more ideas.

Have fun at the lake house today and you're doing awesome on your quit too! :)

 

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Actually today things seemed to catch up to me as far as the side effects of the radiation. They said by week 3 I would be feeling the fatigue and boy where they right. I never did make it to my sisters and just cat napped in and out most the afternoon and still feeling tired and achy. I hope a long sleep finds me tonight because I'm starting to get moody and agitated and that's not the state of mind I want to be in. 

 

One of my girlfriends gave me a CBD/THC 1:1 capsule to help me sleep so I took about an hour ago so we'll see how that goes. She was prescribed that to come off her Xanax and for back pain. Mine just aren't helping anymore and I'm not about to move up a dose. To be honest I'd rather go all natural for my anxiety/insomnia vs a synthetic that's just going to put strain on another organ. I've been researching (always digging in that rabbit hole) and it just seems to make more sense. Not to mention all the other side effects it helps relieve during treatment. I also made sure the would be no interaction between that and the pill I will be taking for treatment and there is no interaction risk and found they actually did a study on it with positive results.  So on my Wednesday appt. I'm definitely bringing up getting off the Xanax and moving to the natural.

 

But on the bright side got my Deadpool PJ's on so maybe that will also bring some better vibes and energy tomorrow!

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Boy hellkat, I was beginning to think you were superwoman.  I knew that radiation had to hit sometime.  Your body needs to recoup from the radiation.  Accept the fact that you are going to be tired for a while.  Fortunately, it will not last forever.  

Can't believe Deadpool jammies come in adult sizes.  I bet you look cute!

I just googled the CBD/THC.  Isn't it amazing how they have found cannabis to have such great medicinal value.

You are doing so great handling all these new challenges.  That positive attitude is going to carry you through all this.

Take care and rest.  

 

 

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Sorry you didn't make it to your sisters today but glad you're listening to your body and taking that much needed rest. When I first quit smoking I was exhausted for months so I can't imagine going through what you are on top of that. 

I hope the CBD helps you get that full nights sleep you need 😘

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7 hours ago, Linda Thomas said:

Boy hellkat, I was beginning to think you were superwoman.  I knew that radiation had to hit sometime.  Your body needs to recoup from the radiation.  Accept the fact that you are going to be tired for a while.  Fortunately, it will not last forever.  

 

Oh it's hit alright. I know today is going to be another chill day for me I'm finally going to listen to my body and just rest. I'm curious to know what other side effects I'll have. I know everyone reacts differently but they said to expect this 'dip' around the third and 4th week and then around week 6 should start coming back up and feeling better. Glad to know it wont last forever. 

 

5 hours ago, jillar said:

I hope the CBD helps you get that full nights sleep you need 😘

 

That pill did seem to work. I think last night was the longest I've slept yet! And I probably would have slept longer had the pups not woken me up. I'm definitely going to take another one tonight. But for now just checking in before I go hit my recliner. 

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