Welp - I guess it's time to start the blog and not clog up the threads: This is my 2nd try but it doesn't seem to show up?? But anyhow!!
TEAM DEADPOOL is officially GAME ON!
Today was another good day! I'm 1/2 way through my radiation treatments with only 5 days to go (excluding weekends)! After this AM's treatment I met back with my radiation/oncology team. They have reduced my steroid intake to only 1 pill a day which means the treatments are doing their job. They plan to wait 60-90 days for my next MRI to make sure everything is A-OK and that is the best waiting time to get the best results. He knew they were waiting on that 'thumbprint' gene however had not known that it was confirmed and immediately ran out to check my files. When he came back he seemed as relieved as we did yesterday!
He wanted to make sure I wasn't having any side effects or vision changes (which I haven't) and advised again that in the up-coming weeks I may start to see my hair falling out. Again - small potatoes but considering I have long thick hair and they keep looking at it like 'we just don't know' and I also feel they don't want me to 'lose' site of the fact that it may or will happen just so I'm prepared. But in all honesty I do expect to lose it - and that's OK and the least of my worries at this point. All my vitals were totally normal and now that I'm down to just the 1 steroid a day sleep should hopefully come a lot easier now and I'll be over the whole 'zinging' around with this unfiltered energy at odd hours of the night. Fingers crossed!!
I made my 1st frozen fruit juice pops this AM and got to try them when we got back - I have to say I'm impressed with myself lol. My mom even liked them and said it took her sweet tooth edge away. Later on I cut up some kiwi and had her try it, she actually ended up stopping by the store on her way home to pick some up she liked it so much! You go mamma!!
Tonight we dine on whole wheat spaghetti - this will be a 1st for me so we'll see how it goes. A nice fresh salad mix with berries, nuts, a tad of parm cheese and homemade dressing! MMMM - cant wait!!
I'm just feeling really good!! I didn't push today and even rested and recharged which was what I needed as the last thing I need to do is burn myself out. All positive thoughts and trying to find that balance with everything seems to be pulling together at last. Gearing up for the next level so to speak.
I hope everyone has a great night and no matter where you are in this battle never give up - never give in or Team Deadpool will come kick your ASS!!!!