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Posted

To fill in the crew.

I have a problem with my heart called CAS or "Coronary Artery Spasms". This is a very rare condition. This started in 2020, 4 stents later and the crazy roller coaster ride of medication adjustments was finally under control for about the last a year and a half. 

Jill followed me through the whole process and was instrumental on helping me find the right diagnosis.

 

I am letting the group know this because for the last month and a half the Angina is back in force which sets off the Spasms. The Spasms are like Charlie Horses in your arteries and shuts off flow of blood to the heart. The only way to stop the attacks is to immediately take quick acting Nitro. It still takes about 4-5 minutes of grueling screaming pain before they subside.

 

So, I am going to set up another stress test this morning which is the first test before being admitted to the CATH lab. The last time they added a stent there was another area that was close to the percentage of flow restriction the insurance requires for them to pay for the procedure. And they were in the same artery where they could have simply added that stent!!

 

I do believe that area is now suspect of causing severe flow restriction? The only final test is a Coronary Angiography where they go in with a little tube through your groin and route it to your heart then squirt dye into the different arteries to map the tight areas and decide on stenting. 

 

This procedure is fairly dangerous; I may choose to travel to a different hospital this time?

 

And with the above information how is it possible just because I felt it was under control I could start smoking again?

This addiction is so incredibly powerful even when life itself is on the line!!!

 

I don't know how the schedule will be, almost called the ambulance last night, they are getting way more powerful. 

 

If I am out of contact for a bit it has to do with this.

I will not smoke....

 

KTQ

Stewbum.

  • Sad 1
Posted

Stress test is scheduled for Thursday at 3:15 pm.  Will know more after that?

Hopefully the next few nights won't be as bad, or I will just have to check in.

Posted

It's true that there are risks associated with an angiogram; however, bad outcomes are quite rare (I think it's around 1%), so take some solace in that.  

 

Keep the quit, friend--

 

Christian99

24 1/2 Years Quit

(17 1/2 Years Since Widowmaker MI and Cardiac Arrest)

  • Thanks 1
Posted (edited)

Sorry to hear Stew😟 I hope everything works out well for you and you don't have another night of worry & excruciating pain to deal will before you can get the test(s) done. Please do keep us updated as you can. Best Wishes & prayers for you my friend 🙏

Edited by Reciprocity
  • Like 1
Posted
27 minutes ago, Reciprocity said:

Sorry to hear Stew😟 I hope everything works out well for you and you don't have another night of worry & excruciating pain to deal will before you can get the test(s) done. Please do keep us updated as you can. Best Wishes & prayers for you my friend 🙏

Thanks Reci.

Prayers are appreciated.  Doing good at the moment even finished the water heater install and mowed the lawn. The Emdur will wear off in a couple hours then it will be a flip of a coin as to how the night goes.

But back to as I call it, Chicks WITH Sticks.

Posted (edited)

Gday Stew

 No details but I’ve had a few medical issues since giving up the smokes. I firmly believe that not smoking contributed in a big part of a good outcome. 
Another thing that is not so obvious is the effect on your treatment team. They are a lot more positive when they know you’re a firm non smoker. 
Hang in there 

 

Ps get over to chicks a sticks …. I’m holding the back but I could do with some help mate

 

 

Edited by Cbdave
  • Like 1
Posted
1 hour ago, Christian99 said:

It's true that there are risks associated with an angiogram; however, bad outcomes are quite rare (I think it's around 1%), so take some solace in that.  

 

Keep the quit, friend--

 

Christian99

24 1/2 Years Quit

(17 1/2 Years Since Widowmaker MI and Cardiac Arrest)

Surviving a Widowmaker and the cardiac arrest is definitely dodging the bullet.

 

     To date I have had 7 angiograms and 4 stents or angioplasty. The spasms are called Variant Angina or Prinzmetal's Angina. Because the spasms work on the tight areas then stop with Nitro the troponins levels show there has been a heart episode, but the flow could be there when they are in. 

There is a provocative test they can do when they are in that will cause the spasms to happen so they can see which ones are the issue ( I also have an additional coronary artery) but it's fairly rare in the US because they may not be able to stop the spasms and it's an immediate cardiac arrest. This test is very prevalent in Europe but the % of good outcomes are scary. There is a local cardiac nurse that had it done, she did have a cardiac arrest but did survive.

 

I am all ready for and pushing the angiogram in hopes that it will require angioplasty, but we won't know until the procedure. With the spasms there are underlying issues that could cause problems during the procedure with the balloon and a stent as you could imagine.

What is the most worrisome is that there is no stent needed and my body has gotten used to the Emdur and support medications.

 

Sorry for the long-winded reply.

Yes.

KTQ

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